Lecture 3.1.: Specifics of Informed Consent in the Context of Open Science (Emmi Jennina Kaaya)

In this lecture, Emmi Jennina Kaaya discusses informed consent in the context of Open Science. She first introduces the concept of informed consent, and then explains how Open Science challenges it. She also examines strategies for informing potential research participants and concludes with a summary of the key points.

Watch the lecture and then answer the questions. 

Further reading: 

The Embassy of Good Science: “Informed Consent” 

Dove, E. S., & Chen, J. (2020). Should consent for data processing be privileged in health research? A comparative legal analysis. International Data Privacy Law, 10(2), 117–131. https://doi.org/10.1093/idpl/ipz023

Dyke, S. O. M., Connor, K., Nembaware, V., Munung, N. S., Reinold, K., Kerry, G., Mbiyavanga, M., Zass, L., Moldes, M., Das, S., Davis, J. M., De Argila, J. R., Spalding, J. D., Evans, A. C., Mulder, N., & Karamchandani, J. (2023). Consent Codes: Maintaining Consent in an Ever-expanding Open Science Ecosystem. Neuroinformatics, 21(1), 89–100. https://doi.org/10.1007/s12021-022-09577-4

Fischer, C., Hirsbrunner, S. D., & Teckentrup, V. (2022). Producing open data. Research Ideas and Outcomes, 8, e86384. https://doi.org/10.3897/rio.8.e86384  

Florea, M. (2023). Withdrawal of consent for processing personal data in biomedical research. International Data Privacy Law, 13(2), 107–123. https://doi.org/10.1093/idpl/ipad008

Hallinan, D., Boehm, F., Külpmann, A., & Elson, M. (2023). Information Provision for Informed Consent Procedures in Psychological Research Under the General Data Protection Regulation: A Practical Guide. Advances in Methods and Practices in Psychological Science, 6(1). https://doi.org/10.1177/25152459231151944